This evening I had the great opportunity to be a part of a worldwide video production for Belgium-based, Union Chimique Belge (UCB). UCB is truly passionate about enabling families with severe diseases to enjoy normal, everyday lives through connecting patients, people and science to make radical breakthroughs with biologics. UCB has partnered with the Arthritis Foundation bringing hope to those of us with Rheumatoid Arthritis (RA) with new a treatment to rapidly reduce the rate of progression of joint damage and to improve measurements of patients' physical function.
As a spokesperson for the Arthritis Foundation, I shared my personal story with RA in great detail so that those who view the video worldwide such as patients, scientists and rheumatologists will get a first hand account of the day to day triumphs and struggles living with this disease. This opportunity is very humbling as it will reach millions who have arthritis and countless professionals who are working on a cure.
It was a great experience, with two hours of free flowing conversational questions and discussion about my life with arthritis and tips and advice on how to manage the disease for those who are newly diagnosed. Thanks to the Barrington Media crew for doing an excellent job today and making the interview process fun. I am very grateful to all the professionals with UCB who dedicate their lives to finding a cure for arthritis, THANK YOU for all you do. I'll keep ya'll posted on when the video is up and live for all to see!
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2 comments:
Mer Mer, You're such an inspiration! Keep up the good work, lady!
I think it's fabulous what you are doing to bring about awareness of arthritis. I am a juvenile arthritis survivor sixteen years and still fighting. It's changed my life but I have learned a lot from it. Thank you for bringing awareness.
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